Cystic Fibrosis Survival Soars as Treatments Advance and Screening Expands

Remarkable advancements in treatments, care, and newborn screening for cystic fibrosis have led to a soaring survival rate, with the median predicted age for CF patients born between 2017-2021 reaching 53 years, up from 38 years just a decade ago.

• The CF population in the US has increased to around 40,000 people, and globally to an estimated 105,000 across 94 countries.
• Advancements in care, treatments, and newborn screening have extended the median predicted survival age for CF patients born between 2017-2021 to 53 years, up from 38 years a decade ago.
• The CF Foundation Patient Registry, established in 1966, collects health data on CF patients and has driven progress in CF care and research, becoming a model for other disease registries.